BTBowhunter

I don't want to clog up the boards with my personal tales of woe but if this helps someone avoid what Im facing it was worth the time to post it.

I got some good news/bad news yesterday. The good news is that we may have found the reason for my heart damage as well as a half dozen other nedical problems I seem to have developed over the last 3-4 years.

The badnews is that it's Lyme disease. The worse news is that it's probably not curable at this point.

The main reason I decided to post it here is that I've had tests for lyme several times that showed up negative. This time, it was detected because I saw a neurologist for neuropathy in my feet and she ordered a bunch of tests including several different tests for lyme. They took 11 vials of blood.

The obvious message is to be careful in the woods and with ticks but even more important is to be insistent if you have reason to worry and get tested EXTENSIVELY before all the bad stuff happens and whie it's still curable.

bowtruck

good message btb sorry for the bad news
lymes stinks as my wife has had it about 16 -18 yrs ago it has affected her joints

rybohunter

So sorry to hear that Bob.

Hopefully now that they are aware of what they are dealing with they can more effectively treat the issues, even if they can't be cured. Best wishes.

bawanajim

I'm sorry to hearabout your condition,we are getting better medicines all of the time,with luck you will be able to benefit from one of them in the future.

Can you list some of the symptoms that this started with or any thing we should look out for.

Thanks for the heads up, Jim

BTBowhunter

Thanks Guys

Good idea Jim

I think everyone knows about the bullseye rash after the tick bite but I never had that.

I think the big lesson is that almost symptom related to lyme mimicks something else. If you get more than one or two of these and you spend a lot of time in the woods, insist on extensive tests. I have been tested several times and I'm about to investigate what tests were done before because I now know that many of the tests are only somewhat reliable. When I had blood drawn this time, the nurse told me there were three different lyme tests on the scrip

The other lesson is that the vaccination, which I had shortly after it came out, doesnt prevent the disease 100% of the time. It may even bring the disease on. Its looking like the vaccine has been pulled from the market and I've found information that there is a possible class action suit against the vaccine maunfacturer

Here are the possible symptoms. It's kind of a broad list but thats what makes the disease so dangerous

I didn't have the first sign, the rash but I've had more than two thirds of the other symptoms over the past 4 years[:'(]

The Tick Bite
1. Tick bite (deer, dog or other)
2. Rash at site of bite
3. Rashes on other parts of your body
4. Rash basically circular and spreading out
5. Raised rash, disappearing and recurring

(NOTE: See the Lyme Disease Foundation website for pictures of Lyme rashes.)

Head, Face, Neck
6. Unexplained hair loss
7. Headache, mild or severe
8. Twitching of facial or other muscles
9. Facial paralysis (Bell's Palsy)
10. Tingling of nose, cheek or face
11. Stiff or painful neck
12. Jaw pain or stiffness
13. Sore throat

Eyes/Vision
14. Double or blurry vision
15. Increased floating spots
16. Pain in eyes, or swelling around eyes
17. Oversensitivity to light
18. Flashing lights

Ears/Hearing
19. Decreased hearing in one or both ears
20. Buzzing in ears
21. Pain in ears
22. Ringing in one or both ears

Digestive and Excretory Systems
23. Diarrhea
24. Constipation
25. Irritable bladder (trouble starting, stopping)
26. Upset stomach (nausea or pain)

Musculoskeletal System
27. Joint pain or swelling
28. Stiffness of joints, back, neck
29. Muscle pain or cramps

Respiratory and Circulatory Systems
30. Shortness of breath, cough
31. Chest pain or rib soreness
32. Night sweats or unexplained chills
33. Heart palpitations or extra beats
34. Heart blockage

Neurologic System
35. Tremors or unexplained shaking
36. Burning or stabbing sensations in the body
37. Weakness or partial paralysis
38. Pressure in the head
39. Numbness in body, tingling, pinpricks
40. Poor balance, dizziness, difficulty walking
41. Increased motion sickness
42. Lightheadedness, wooziness

Psychological well-being
43. Mood swings, irritability
44. Unusual depression
45. Disorientation (getting or feeling lost)
46. Feeling as if you are losing your mind
47. Overemotional reactions, crying easily
48. Too much sleep, or insomnia
49. Difficulty falling or staying asleep

Mental Capability
50. Memory loss (short or long term)
51. Confusion, difficulty in thinking
52. Difficulty with concentration or reading
53. Going to the wrong place
54. Speech difficulty (slurred or slow)
55. Stammering speech
56. Forgetting how to perform simple tasks

Reproduction and Sexuality
57. Loss of sex drive
58. Sexual dysfuntion
females only:
59. Unexplained menstrual pain, irregularity
60. Unexplained breast pain, discharge
Males only:
61. Testicular or pelvic pain

General Well-being
62. Unexplained weight gain, loss
63. Extreme fatigue
64. Swollen glands
65. Unexplained fevers (high or low grade)
66. Continual infections (sinus, kidney, eye, etc.)
67. Symtpoms seem to change, come and go
68. Pain migrates (moves) to different body parts
69. Early on, experienced a "flu-like" illness, after which you have not since felt well.

Edcyclopedia

Sorry too hear - Bud.
It's a great post and thanks for the info., your surely to help someone and maybe even me ~ THANK YOU...

Take care and the best of luck.

sproulman

sorry to hear that.

my friend did not get his dog a lymes shot.

the dog almost died 3 months ago.

rear legs locked up on him.

as for me, i get bit about 20 times from 4 th week of march until jan,not this year but last year ticks were out in jan.

i almost LIVE on anti botics every summer.


best advice is this,when you get home from woods,take all your clothes off and throw in wash.

next, go to mirror,get a full 6 ft long mirror.

look for ticks,usually they will be on your back from waist up and sometimes on your stomach.

95% are usually on your back.

use tick spray and keep your shirt collar closed on your neck.

take your hat and put a hanky,big one so it hangs down your shoulders.

most of ticks fall from trees while walking.

they follow your breath to your head,then down your neck.

my doctor said he hada hunter come in with 100 on him.

he was fishing in a small creek and a old rotten tree fell over he was leaning against.

if BIT, go to doctors,dont mess with it and dont look for a RASH, JUST GO.

get ADVANTIX 9 for your dog, it works GREAT.

dont let a dog on your couch or bed , ticks will come off them at night.then on you.

they need to come out with a tick spray that is odorless so it can be used in archery.

bluebird2

Sorry to here about your problems I wouldn't wish that on anyone. I suspect I'll get it sooner or later since I've been bit at least more than 20 times.

Does anyone else get a red rash around the bite and significant itching due to the anticoagulant they release?

Buck Hunter 1

BTB, sorry for this disease. I know you are a dedicated sportsman so I hope this will not affect your time in the woods. Glad they caught it before any worse, good luck God Bless!

BTBowhunter

Thanks for all the well wishes guys. I would guess that most of you already know that I don't run from fights and I'll win this one too. At least I now know what I'm fighting!

And seriously, if anything gives you reason to suspect lyme, insist on all thetests. Don't let them blow it offeven if you have to bitchslap the doctor into it!!