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What the heck is wrong with me?

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Old 02-02-2015, 07:27 PM
  #21  
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Results finally back! I DO NOT have lyme disease. Then we discussed the always present possibility of false negatives.

Now we are looking at possibly Reiter Syndrome?

(Reiter syndrome is a type of reactive arthritis, meaning that it happens as a reaction to a bacterial infection in the body. The infection usually happens in the intestines, genitals, or urinary tract. Reiter syndrome includes joint swelling and pain, often in knees, ankles, and feet, along with inflammation of the eyes and urinary tract. It is not contagious, but the bacteria that trigger it can be passed from one person to another.
There is no cure for Reiter syndrome, but you can control the symptoms. For most people, symptoms will go away in 2 - 6 months.)
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Old 02-03-2015, 04:49 AM
  #22  
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Originally Posted by uncle matt View Post
Results finally back! I DO NOT have lyme disease. Then we discussed the always present possibility of false negatives.

Now we are looking at possibly Reiter Syndrome?

(Reiter syndrome is a type of reactive arthritis, meaning that it happens as a reaction to a bacterial infection in the body. The infection usually happens in the intestines, genitals, or urinary tract. Reiter syndrome includes joint swelling and pain, often in knees, ankles, and feet, along with inflammation of the eyes and urinary tract. It is not contagious, but the bacteria that trigger it can be passed from one person to another.
There is no cure for Reiter syndrome, but you can control the symptoms. For most people, symptoms will go away in 2 - 6 months.)
Here's hoping your symptoms go away in that 2-6 month period.

My husband had Rheumatic fever as a child. That's a bacterial infection of the lining of the heart. Wound up with no disabilities. But it left him with arthritis. It's not uncommon. Weird but it happens.
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Old 02-03-2015, 09:27 PM
  #23  
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Sorry to hear that Matt, but i'm glad you finally got a diagnosis and can control the condition.
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Old 02-04-2015, 05:22 AM
  #24  
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Matt, I have rheumatoid arthritis, I got it in my early 30s. When it first hit me it was like you are describing. Severe pain in all my joints, hands and fingers swelling, fingers going to sleep out of the blue. It would jump around in all the large joints. I was misdiagnosed several times until I went to a reumatologist who figured out what I had. Don't give up, the answer is there somewhere. I had me in one heck of a state mentally until I got the correct diagnosis.
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Old 02-10-2015, 09:30 PM
  #25  
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Well I finished my stretch of the prescribed steroids and now within a few days I'm hurting again. It started with a little and everyday it gets worse. The aching is once again in the shoulders, arms and knee/upper leg area.

I stopped to get gas in my truck and I walked into pre-pay like I was an old man. Then I could barely get the gas cap off my truck. My hand wasn't really hurting, I just didn't have the hand strength.

If tomorrow morning it's worse I'm calling doc and telling them the swelling isn't back, just the pain and figure out which specialist they are going to refer me to because there ain't anything they can look at me and see other than what I tell them on the phone. It ain't like I changed colors or something so no easy billing the insurance this time for an unnecessary office visit. Get me to someone who can do something!
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Old 02-12-2015, 09:19 PM
  #26  
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You're just getting old........
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Old 02-13-2015, 04:47 AM
  #27  
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Not really anything to joke about. If you haven't gone through that kind of pain without knowing what is causing it.
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Old 02-13-2015, 01:27 PM
  #28  
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Matt, I hope they get it figured out brother.

I haven't been to a doctor in years and know I need to, at least for a bicentennial check up. Hahaha At 55 now I know there are things I should have checked.
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Old 02-15-2015, 06:38 PM
  #29  
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On Thursday I had had enough of the pain and unanswered questions in my mind. So I called the doctor. Doctor not in today and they wanted her (my doc is female) to look over everything before moving forward so I agreed to wait til morning and talk to her. So Friday morn I talk with her and she says she is goiung to give me a referral to a rheumatologist. I say OK and she gives me their number and address. Give me about an hour she says so we can get the referral into the system and they can get you scheduled. (This is obviously something I want right away bc I'm in friggin pain, right?) Well I call rheumatologist office a couple hours later and they say they have no referral..... I call doc's office with a stout WTH? Why do I have to babysit this stuff? Who was supposed to make the referral? and why didn't they? I get the usual blah, blah, blah... They will do the referral and check that it is in system (about an hour, blah, blah) then they'll call and let me know.

I get the call and call the rheumatologist. OK the soonest they can get me in is APRIL 20th!

HUH?

Hey lady, I'm calling because I have a nothing but pain, questions, pain, more questions and no answers. I CAN'T WAIT 9 WEEKS!

Oh you can call your doctor and they can call our office and work something out with that....

Shouldn't whatever needed to be "worked out" have been mentioned in the referral? So I call back to doc's office at a little after 3pm - and they are gone until Monday.

Now I'm having serious bladder problems because guess what? I'm pee'd!

At least I can still get into and out of bed on my knees and say my prayers.
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Old 02-17-2015, 08:47 PM
  #30  
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So now I guess they either had a change of plan or just wanted to do something with me until something can get worked out with Rheumatologist. They sent me to an infectious disease doctor. Who said she has good faith in previous test but is going to treat me as if I had it for 10 days anyway. Of course they took blood too.

So now to my reward for yesterday's and today's extended phone efforts trying to steer these people down Do Your Dang Job Street. My reward is an appointment with Rheumatologist for March 19th instead of April 20th. Oh yea over a month away!

So what to do with this pain for a month? I guess they think it best that I take these pain killers for a month. Tramadol 100mg/4 hrs. along with more Diclofenac for the inflammation.

IDK about this Tramadol stuff - it's powerful. How am I to get anywhere when it says don't drive or operate machinery....?

I'll be back on the phone again tomorrow with my regular doctor. This appointment a month out is BS.
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